This webinar, moderated by Patrick Short, CEO and co-founder of Sano Genetics, and featuring two panelists, Jessi Keavney and Krista Qualmann, discussed the importance of genetic testing in understanding an individual's risk for Parkinson's disease.
Patient engagement has always been a cornerstone of successful clinical trials. It's a dynamic process that begins long before the trial and continues well after its conclusion. By fostering a strong relationship between researchers and patients, patient engagement can help improve enrollment, boost retention rates, improve the accuracy of data collected, and ensure the trial's overall success. This blog outlines the importance of patient engagement, then introduces the concept of a “Virtual Waiting Room” through which clinical trial sponsors can engage patients throughout the stages and phases of a study.
Electronic consent, or e-consent, is a method of obtaining informed consent through an electronic system rather than a paper form. It typically incorporates multimedia components such as videos and interactive presentations to explain the risks and benefits of trial participation, supporting different learning styles and improving participant comprehension. E-consent can be conducted in the clinic or remotely, with participants accessing the platform through a website or dedicated application.
Recently, our team was honoured to attend the World Orphan Drug Congress USA in Boston. The event brought together key stakeholders, experts, and industry leaders in the field of orphan drugs and rare diseases, and provided a platform for collaboration, knowledge sharing, and innovation in the pursuit of improved treatments for rare diseases. The Sano team enjoyed the insightful keynote presentations, interactive panel discussions, and valuable networking opportunities.
Clinical trials are the foundation of modern medicine. They determine which treatments reach patients and how those treatments are understood. Yet for much of history, women were excluded from this process entirely. The male body was treated as the default, and findings from male-only studies were assumed to apply to everyone.
As the landscape of healthcare and technology continues to evolve, clinical trials are undergoing significant transformations. In our latest trend report, we delve into the future of clinical trials, highlighting key trends that are revolutionising the research process. From collaboration and transparency to decentralised trials and patient-centred research, these trends hold the promise of a more efficient, inclusive, and patient-centric approach to medical advancements.
Parkinson's disease (PD) is a rapidly growing neurodegenerative disorder affecting millions worldwide. As research progresses, we are learning more about the role of genetics in PD development. DNA testing has emerged as a powerful tool for identifying genetic mutations associated with an increased risk of Parkinson's disease.
Clinical trials play a vital role in advancing medical research, developing innovative treatments and improving patient care. But, a major challenge persists in the field: a lack of diversity among participants.
DNA sequencing can play an important role in clinical trials, providing valuable insights into genetic variations and facilitating research in personalised medicine. However, choosing the right laboratory for DNA sequencing is crucial to ensuring precise results. In this blog post, we will discuss the key factors to consider when selecting a lab for clinical trial DNA sequencing, including expertise, technology, quality control, turnaround time, and data security.
In genetically stratified trials, patient recruitment is structurally harder than in conventional studies. Eligibility depends not just on clinical diagnosis, but on confirmed biomarker or variant status — a requirement that most traditional recruitment pathways are not designed to handle.