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Webinars

Hear from experts on some of the most pressing topics in the precision medicine industry today. 

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W E B I N A R 

Innovating for impact: How natural history studies pave the way for rare disease therapies

In this webinar, Sano CEO Patrick Short is joined by former Reata CEO Warren Huff. The two discuss the fascinating journey from natural history studies to the first approved therapy for Friedreich's ataxia. 
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Precision medicine ethics: Navigating genetic screening with care

In this webinar, Lindsey Wahlstrom-Edwards, Partnerships Lead at Sano, is joined by an all-star group of experts, including Jean Swidel, Christine von Raesfeld, Erica Barnes, and Molly McGinniss. The conversation focuses what must be considered from an ethical perspective when building population-level testing programs. 
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Sano patient finding protocol: Helping you find the right patients faster

Join Hayley Holt, Senior Project Manager, as she discusses Sano’s innovative patient finding protocol. Learn how to streamline patient recruitment, reduce costs, and ensure faster study initiation.
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Power to the patients: how participants with ALS/MND are shaping research, care, and policy

Paul Wicks explores the human impact behind ALS statistics in his LifeArc Translational Summit 2024 presentation, highlighting patient experiences, challenges in rare conditions, and breakthroughs in patient-led research.
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From theory to practise: Patient-centric product design in clinical trial technology

Join us for an insightful webinar on the critical role of patient-centric design in healthcare technology. Presented by Jess Burrows, a Sano Product Designer, and Marisa Ngbemeneh, a Sano Product Manager, this session explores the importance of placing patients at the core of our design practices.
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Light The Way: Lessons learned from a genetic testing, education, and support platform

Paul Wicks, PhD, discusses personal experiences and recent updates on Light The Way, an innovative online support platform for people at risk of genetic ALS/MND.
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Alpha-1 Antitrypsin Deficiency: Engagement, screening, and retention

Join Hayley Holt, PhD, for a Sano Genetics case study on Alpha-1 Antitrypsin Deficiency (AATD), covering our challenges and approach when focusing on engagement, screening, and retention.
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Legal landscapes in precision medicine Episode 2: Market access and intellectual property law

Explore the world of legal complexities in precision medicine drug development in our upcoming webinar, hosted by Sano Genetics’ General Counsel Mina Frost as she discusses market access and intellectual property law.
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Understanding complex disease biology: Insights into the genetics of long COVID 

In this webinar, PrecisionLife and Sano Genetics discuss groundbreaking research approaches that have overcome challenges to uncover the genetics of long COVID and enable the discovery and development of new and better treatment options for patients with complex chronic diseases.
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From genome to bedside: How genetics is transforming modern medical practice

Join Patrick Short and Dr. Andrea Gropman for a webinar exploring the impact of genetics on modern medical practice.
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Unlocking potential: How AI is shaping the drug development pipeline

Join Charlotte Guzzo and experts Parker Moss, Margo Georgiadis, and Guillermo de Angel exploring AI's impact on drug development.
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Sano product spotlight

Sano’s Senior Product Manager Clare Clarke outlines Sano's seamless integration of recruitment, biomarker testing, and engagement within research trials, and provides an overview of Sano’s technology.
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Parkinson's disease: Engagement, screening, and retention

Join Dr. Patrick Short for a Sano Genetics case study on Parkinson's Disease, covering our challenges and approach when focusing on engagement, screening, and retention.
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Genetic essentials for clinical research professionals: Part 2

Join Charlotte Guzzo for a webinar exploring advanced genetic concepts crucial for clinical research, including genetic variation, gene regulation, gene-environment interactions, and population genetics.
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New beginnings: Clinical, social, and ethical perspectives on newborn genome sequencing

Dive into the cutting-edge field of newborn sequencing in our webinar which brings together distinguished experts Dr. Wendy Chung, Holly Peay, Ph.D., and Kira Dineen to discuss the latest advancements, clinical impacts, and ethical considerations of genetic screening in newborns.
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Legal landscapes in precision medicine Episode 1: Patient privacy and the intricacies of clinical trials

Explore the world of legal complexities in precision medicine drug development in this webinar, hosted by Sano Genetics’ General Counsel, Mina Frost. 
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Empowering ALS families: Insights and support strategies

Dr. Patrick Short is joined by Paul Wicks and Daniel Barvin for a webinar focusing on the essential role families play in supporting those affected by ALS (Amyotrophic Lateral Sclerosis), including individuals who are gene carriers of the condition.

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Inside MASH: Exploring detection, treatment, and future directions

Join host Dr. Patrick Short for an insightful webinar with Dr. Dimitar Tonev. This session provides valuable details into the evolving landscape of metabolic dysfunction-associated steatohepatitis  (MASH), including diagnosis, treatment breakthroughs, and future directions.

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Genetics essentials for clinical research professionals

Join host Dr. Patrick Short as he discusses the essentials of genetics and genomics, including genetic variation, genetic testing, and more.

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International perspectives on genetic testing in ALS

Join host Dr. Paul Wicks in discussion with Ammar Al-Chalabi, PhD, Kristiana Salmon, and Dr. Patrick Short about global genetic testing for ALS.

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Representation matters: Why equitable access and community engagement are critical in genetic research

Join host Lindsey Wahlstrom-Edwards, MPH in discussion with Natasha Ratcliffe, Ebony Scott, and Del Smith, PhD, on the techniques used by industry-leading patient advocacy groups to make research more diverse and representative. 

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Does the age of onset in SOD1-mediated ALS affect the speed of progression?

Join host Dr. Paul Wicks and Dr. Sarah Opie-Martin as they discuss the latest research on SOD1 gene variants and their association with ALS. 

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The technical challenges of biomarker-based pre-screening

Join host Dr. Patrick Short in an informative conversation with William Jones, about the technical complexities of managing comprehensive pre-screening programs that encompass biomarkers, patient-reported outcomes, and medical records. 

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Overcoming the challenges of decentralised clinical trials

Join host Dr. Paul Wicks in conversation with Craig Lipset and Liam Eves focussed on some of the major challenges of decentralised and hybrid clinical trials, solutions to overcome them, and some practical examples.

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Patient engagement in precision medicine research

Join host Dr. Paul Wicks in a discussion with Jillian Hastings Ward, Rebecca Middleton, and John Wilbanks. The discussion focussed how patients can be more involved in precision medicine research, as well as how design systems can impact engagement.

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Connecting for success: The power of purposeful participant engagement

Join Sano team members Ross Rounsevell and George Bowley as they explore how new technology can help simplify patient engagement processes.

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Genetic testing 201: Considerations and next steps for sharing your results

Join host Dr. Patrick Short and guests Krista Qualmann and Jessi Keavney in conversation about how and when to share genetic testing results. 

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The genetics of MASLD and MASH

Join host Lindsey Wahlstrom-Edwards, MPH, with guests Wayne Eskridge and Neeraj Mistry in a discussion about the genetics of liver disease and how Sano and the Fatty Liver Foundation are working together to accelerate precision medicine in this area. 

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An insider’s view on
drug development in MASH
with Dimitar Tonev

Join host Dr. Patrick Short in conversation with Dr. Dimitar Tonev about the MASH therapy landscape, the importance of genetics in trial recruitment, and the controversial topics that should be addressed to bring real improvements to MASH patients.

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Opportunities in improving recruitment in decentralized clinical trials

Join host Dr. Patrick Short in conversation with Joss Warren on developing collaborative solutions with industry leading technologies and services that integrate with decentralised clinical trial platforms.

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How patient organizations can support innovation and keep their community's health information safe

Join host Dr. Patrick Short in conversation with Lindsey Wahlstrom-Edwards about the impact of genetics on personalised medicine and the vital importance of data security and patient ownership.

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Non-invasive screening and genomics in MASLD with the Fatty Liver Foundation

Join host Dr. Patrick Short with guests Wayne Eskridge and Neeraj Mistry in a discussion about early detection in metabolic dysfunction-associated steatotic liver disease (MASLD) and MASH using genetics, non-invasive liver testing, and other new technologies.

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Meaningful technology, Genomics England

Join host Dr. Paul Wicks in a conversation with Jillian Hastings Ward, Rahki Rajani, and Dr. Patrick Short. The discussion focussed on what taking a participant-centric approach can mean for organisations supporting research.

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Participant diversity: Increasing the impact of biomedical research

Join host Dr. Patrick Short with guests Mavis Machirori, Charles Steward, and Jessica Mai Sims as they discuss the topic of participant diversity in biomedical research. 

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Beyond the genome: Ethical and regulatory landscapes in precision medicine

Join Sarah Howard, Sano's Head of Quality and Regulatory, as she discusses the regulatory landscape, ethical considerations, and data management and privacy in precision medicine trials. 

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Precision medicine research in Multiple Sclerosis: What is on the horizon?

Join host Dr. Patrick Short in a conversation with Dr. Mark Kotter about the future of precision medicine treatments for Multiple Sclerosis.

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How can applying a ‘rare disease mindset’ accelerate and de-risk precision medicine trials?

Join host Dr. Patrick Short and Patti Engel as they discuss lessons from a success story in running a proactive patient finding programme that combined HCP outreach, direct-to-patient outreach, free next-generation DNA sequencing, and a decentralised trial design.

At-home saliva samples and at-site blood draws comparison report

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The ethical and legal framework for a Genomics England and Sano Genetics participant engagement platform

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Hear from experts on some of the most pressing topics in the precision medicine industry today. 

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