Sano blog (36)

genetic testing neurodegenerative disease patient engagement

£330K grant awarded to support and engage patients at risk of MND/ALS

£330K grant awarded to support and engage patients at risk of MND/ALS, and track the psychological impact of genetic testing.

patient engagement

Connecting for success: The power of purposeful participant engagement

This webinar, featuring Sano Genetics team members Ross Rounsevell and George Bowley, highlights the importance of purposeful participant engagement in research...

industry report rare disease genetic testing

Alpha-1 Antitrypsin Deficiency report: Impact and diagnosis

Our latest insights report focuses on Alpha-1 Antitrypsin Deficiency (AATD), a rare genetic disorder with significant implications for both lung and liver healt...

genetic testing neurodegenerative disease

Webinar recap: International perspectives on genetic testing in ALS

This webinar, hosted by Paul Wicks and featuring a panel of experts in ALS and genetics, focuses on the challenges and variability in genetic testing and counse...

precision medicine protocol design

Clinical trial design in precision medicine: 7 CROs and protocol partners

Clinical trial design and protocol development sit at the foundation of every successful study. The choices made at this stage, from study type and endpoint sel...

genetic epidemiology neurodegenerative disease

Webinar recap: Does the age of onset in SOD1 ALS affect the speed of progression?

Mutations in the SOD1 gene were the first identified genetic cause of ALS, discovered in 1993. Yet SOD1-ALS accounts for only approximately 2% of all ALS cases,...

protocol design

Navigating smooth clinical trials: Tips for pharma and biotech sponsors to avoid study rescue

Clinical trials play a crucial role in the development of pharmaceutical and biotech products. However, unforeseen challenges can arise during the trial process...

data privacy

Data security and privacy considerations in genomics

Data security is the practice of protecting digital information from unauthorized access, corruption, or theft throughout its entire lifecycle. For biotech comp...

protocol design patient engagement

Webinar recap: Why patient centricity is no longer optional in ALS clinical trials

Patient centricity has become increasingly important in clinical trials for ALS. In this webinar, host Paul Wicks and Cathy Collet discuss the challenges of pat...

biomarkers precision medicine rare disease

Unravelling the complexities of genomics-driven drug discovery [whitepaper]

Genomics-based drug discovery offers great potential for the development of targeted therapies that can offer new and better treatment options for patients. By ...

Clinical research blog