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Explore our blog for insights into the big questions in precision medicine and clinical research.

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Why high costs are holding back precision medicine trials
precision medicine

Why high costs are holding back precision medicine trials

Precision medicine offers more targeted treatments, better patient outcomes, and even the potential to transform how we approach disease. But getting there isn’...
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Building better data ecosystems for rare and ultra-rare conditions
precision medicine genetic epidemiology rare disease

Building better data ecosystems for rare and ultra-rare conditions

In rare and ultra-rare diseases, data availability is one of the most significant constraints in research and drug development. With thousands of rare condition...
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Beyond recruitment: Building lasting relationships with trial participants
patient recruitment patient engagement

Beyond recruitment: Building lasting relationships with trial participants

As clinical trials become more complex and patient populations more diverse, the traditional focus on recruitment alone is no longer enough. Building long-term ...
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leeland
precision medicine genetic epidemiology podcast recap

Podcast recap: Leeland Ekstrom on large-scale genomics, real-world data, and the future of precision medicine

In the latest episode of The Genetics Podcast, Patrick Short chatted with Leeland Ekstrom, CEO and co-founder of Nashville Biosciences (NashBio), a for-profit s...
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Sharon Terry on patient-led research, biobanking, and the future of rare disease advocacy
rare disease podcast recap patient engagement

Podcast recap: Sharon Terry on patient-led research, biobanking, and the future of rare disease advocacy

In the latest episode of The Genetics Podcast, host Patrick Short sat down with Sharon Terry, the CEO of Genetic Alliance, to discuss her extraordinary journey ...
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Overcoming barriers to genetic hearing loss treatment
rare disease genetic testing health equity

Overcoming barriers to gene therapy for genetic hearing loss

Despite the huge potential of new technologies to enable precision approaches to diagnosing, managing, and treating genetic hearing loss, significant barriers a...
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hearing loss and precision medicine
precision medicine genetic testing

Gene therapy and precision medicine for hearing loss

Hearing loss affects over 1.5 billion people worldwide, with nearly half of all cases linked to genetic factors. Despite this, diagnosis and treatment options h...
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Dr. John Lepore on the expanded human proteome and the future of drug discovery
biomarkers precision medicine podcast recap

Podcast recap: Dr. John Lepore on the expanded human proteome and the future of drug discovery

In the latest episode of The Genetics Podcast, Patrick spoke with Dr. John Lepore, physician-scientist and CEO of ProFound Therapeutics. ProFound Therapeutics, ...
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The future of hearing loss treatment
biomarkers precision medicine genetic testing

Hearing loss treatment: Gene therapy and AI advances

For decades, treatment for congenital and genetic hearing loss has largely relied on devices such as hearing aids and cochlear implants. While these technologie...
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