Sano blog | patient engagement

Patient engagement through the precision medicine lifecycle

precision medicine patient engagement

The long game: Precision trials shouldn’t start from zero every time

Precision medicine sponsors invest heavily to identify, educate, screen, consent, genotype, and support rare patients. In many programs, once a trial ends, that...

precision medicine data privacy patient engagement

Trust is the foundation of precision medicine

UK Biobank and similar resources have made an extraordinary contribution to biomedical research, enabling important advances across genomics, population health,...

patient recruitment patient engagement

The psychology of kit return: What drives completion?

Genetic testing has become a core component of patient identification and stratification in modern clinical trials, particularly in rare disease and precision m...

Patient engagement in rare disease trials

rare disease patient engagement

Patient engagement and education insights from rare disease trials

Recruiting and retaining patients in rare disease and genomic medicine research requires more than outreach. Many participants need support understanding geneti...

rare disease patient engagement

Rare disease drug development requires designing for access from day one

Rare disease innovation has accelerated in recent years, particularly in cell and gene therapy (CGT). Yet for drug developers, one challenge remains persistent:...

rare disease patient engagement

Barriers to long-term follow-up in cell and gene therapy

Cell and gene therapy (CGT) programs are committing to 10-15 years of follow-up – often without the infrastructure to support it. FDA guidance for certain gene ...

patient recruitment patient engagement

From click to randomization: What truly predicts trial success?

Digital recruitment has become a standard part of clinical trial execution. Sponsors invest heavily in online outreach, patient referrals, and awareness campaig...

Effective site enablement in precision medicine

patient recruitment patient engagement

What strong site enablement really looks like: Lessons from Sano’s site expert

Trial sponsors often assume that site enablement is largely complete once a trial launches. Feasibility assessments, training materials, and startup timelines a...

thought leadership rare disease patient engagement

Redefining accessibility in cell and gene therapies

Cell and gene therapy continues to advance across a growing number of rare genetic conditions. As more of these therapies move closer to the clinic, a central t...

Communicating with clinical trial participants

patient recruitment patient engagement

Closing the communication gap: A sponsor’s guide to building patient trust and retention

Participation in clinical trials can be burdensome and disruptive. In addition to practical inconveniences and discomfort, participants may have to take time of...

Clinical research blog

The long game: Precision trials shouldn’t start from zero every time

Trust is the foundation of precision medicine

The psychology of kit return: What drives completion?

Patient engagement and education insights from rare disease trials

Rare disease drug development requires designing for access from day one

Barriers to long-term follow-up in cell and gene therapy

From click to randomization: What truly predicts trial success?

What strong site enablement really looks like: Lessons from Sano’s site expert

Redefining accessibility in cell and gene therapies

Closing the communication gap: A sponsor’s guide to building patient trust and retention

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