Ulcerative colitis

Ulcerative colitis

New Ulcerative colitis content for you

Tags: Ulcerative colitis Science Patient advocate

Living with ulcerative colitis: talking to your doctor when your treatment is not working

Julie Roberts is a member of the Sano community and lives in North Carolina, US. She has lived with the symptoms of ulcerative colitis for almost 40 years.

Read more
Tags: DNA Genetic Counsellor Genetics IBD

Exploring the genetics of inflammatory bowel disease

Genetic counsellor Kira Dineen discusses some of the genes which can impact IBD.

Read more

Ulcerative colitis research

You're seeing the 'logged out' version of this page

To access the Sano Ulcerative colitis survey and see if you are eligible for current research, please

Login
or
Sign Up

PicnicHealth IBD

Condition areas: Ulcerative colitis, Crohn’s disease

Archived

Goal: To collect data from IBD patients from across the US into a single (anonymized) research database, allowing researchers to identify trends

Read more

CALDOSE-1 Clinical Trial

Condition area: Ulcerative colitis

Archived

Read more

Insights & Information

Ulcerative colitis Prevalence

Ulcerative colitis is estimated to affect about one in every 330 people globally. [1]

In 2017, North America was recorded as having the highest global prevalence of IBD and the Caribbean recorded as having the lowest. [2]

Genetics

Researchers have found variations in dozens of genes which may be linked to developing ulcerative colitis, but the role of these variants is not yet confirmed or fully understood. [3]

The heritability of Ulcerative colitis is medium - 60%

Main Symptoms

Recurring diarrhoea
Tummy pain
Frequent need to empty bowels
Fatigue
Weight loss

Severity of symptoms varies, depending on how much of the colon is inflamed and how severe the inflammation is. [4]

Impacts

6.8 million cases of IBD were recorded word-wide in 2017 with its global prevalence growing significantly over a 27 year period. [5]

The Nation Institute for Health and Care Excellence (UK) reports that ulcerative colitis can develop at any age, but that peak incidence occurs between the ages of 15 and 25 years. [6]

Resources for advice

These are the best resources we've found so far on managing and learning about Ulcerative colitis . Please let us know if you have other and we'll add them to the list!

Share this page to help us reach more people, build a better information set, and move research forward!