5 Jun, 2019

Who are Sano Genetics?

Introducing Sano Genetics a platform built to connect individuals with exciting genetic research projects. This blog covers our current research projects (on eczema and psoriasis) and our plans for The Genetics Podcast.

We recently made our first ever podcast and what better way to kick it all off, than to start by introducing who we are. In this episode, our CEO and one of our co-founders, Dr Patrick Short discusses how Sano Genetics came to be, along with some interesting thoughts on the future of the healthcare sector, DNA testing and data transparency.

What can you expect from our new podcast?

In the words of Dr Patrick Short ‘the reason we decided to start this podcast is to help you understand more about genetics, personalized medicine and to try to bring you some great conversations with both expert scientists and patients working at the forefront of research and personalized medicine.’ We hope that with these podcasts, we can tackle a lot of different topics including; what you can and can’t learn from genetic data, exciting new research that’s being conducted on our platform and different issues around data privacy and how our company uses your health data.

How we’re changing genetic testing

Our mission as a company is to build the future of personalised medicine, and the way we’re hoping to do that is by bringing people closer to research. Dr. Short describes his vision for Sano as instead of being a research ‘subject’ or having research ‘done on you’, you're actually part of the research process so you can help decide the goals from the beginning and also see how your data is being used and stay in control of what's going to happen to it in the future.

We think that in the next decade, the nature of research and healthcare is really going to change. The future is more personal and the way to make that happen is by bringing patients, patient groups and people who are healthy now but may not be in the future, closer to this process. We’re also living in a time where we’re realising that our data is not only incredibly important but it’s now become very valuable. Unfortunately, there are companies and individuals that take ownership of your data so they can use it to make a profit. We want to change this. A big part of our values is complete transparency and data ownership for our users. Rather than companies monopolizing your data, you should be in the driver's seat.

Research is the future

Research is the way we find new treatments, cures and information. We connect researchers with you to speed up this process. You decide what projects you want to take part in and are updated every step of the way.

At the moment we’re working with researchers looking into rare disorders like Phelan McDermid syndrome (a rare neurodevelopmental disorder that affects mostly children) and muscular dystrophy. On the other hand, we’re also working on common conditions like eczema and psoriasis. Right now, we’re asking people who have already had their genome sequenced, with a direct-to-consumer genetic test like 23andme, My Heritage or Ancestry, to sign up, share their data with researchers and help take our understanding of these conditions to the next level.

What’s next?

This is just a short excerpt from our podcast - if you want to hear more you can find it on apple podcasts and spotify. Here we talk to Craig Macpherson, managing director of DNA testing choice, about what he learned from doing over 300 DNA tests. If you have any questions you’d like us to ask our genetic expert guests, or if you want to let us know what topics you’re interested in, then we’d love to hear from you. You can drop us an email at podcast@sanogenetics.com or look us up on Twitter, Facebook or Instagram.

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